The toolkit was created together with people with learning disabilities, families, learning disability support staff, and healthcare professionals. It includes resources and approaches to support staff with end of life care planning with people with learning disabilities.
Overview of The Victoria & Stuart Project
About the project
Our project was called Co-designing a toolkit and resources for end-of-life care planning with people with learning disabilities within social care settings. We named it The Victoria and Stuart Project after two of the people who inspired the research project. Victoria Willson (1970 –2013) and Stuart Hasler (1978 –2020) both had learning disabilities. Each were able, with the support of their families, friends and a team of professionals and services, to live fully until the end of their lives and die in the way they wanted – their own way.
The Victoria and Stuart Project was about finding the best ways to help people with learning disabilities plan for the end of their life. We wanted to make sure that people with learning disabilities get the right care and support when they are ill and going to die. We worked with lots of people to try and get this right. ​This includes: People with learning disabilities, families, learning disability services and end of life care services​.
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You can find more information about the project here