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Publications

Here are the papers we have published from the project so far. We are still writing more papers and will add them to this page as soon as they get published.

Tuffrey-Wijne I, Bruun A, Tilley E, Giles J, Gibson S, Cresswell A, Keagan-Bull R, Jordan L, Allen G, Swindells S, Payne N, Hughes R & Anderson-Kittow R. 2025. Co-Designing a Toolkit of Approaches and Resources for End-of-Life Care Planning With People With Intellectual Disabilities Within Adult Social Care Settings: A Multi-Phase Study. Journal of Applied Research in Intellectual Disabilities 38: e70019. doi:10.1111/jar.70019.

 

​​Bruun A, Jordan L, Giles J, Hughes R, Anderson-Kittow R & Tuffrey-Wijne I. 2025. Don’t assume, ask! A focus group study on end-of-life care planning with people with intellectual disabilities from minoritised ethnic groups. BMC Palliative Care 24(13): 1-12. doi:10.1186/s12904-025-01646-0.

 

​Tilley E, Rouse L, Tuffrey-Wijne I & Anderson-Kittow R. 2024. Reflections on an Evidence Review Process to Inform the Co-Design of a Toolkit for Supporting End-of-Life Care Planning With People With Intellectual Disabilities. Health Expectations 27: e70062. doi:10.1111/hex.70062.

 

​Bruun A, Cresswell A, Jeffrey D, Jordan L, Keagan-Bull R, Giles J, Swindells S, Wilding M, Payne N, Gibson S L, Anderson-Kittow R & Tuffrey-Wijne I. 2024. The All Together Group: Co-Designing a Toolkit of Approaches and Resources for End-of-Life Care Planning With People With Intellectual Disabilities in Social Care Settings. Health Expectations 27: e14174. doi:10.1111/hex.14174.

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Bruun A, Cresswell A, Jordan L, Keagan-Bull R, Giles J, Gibson S, Anderson-Kittow R & Tuffrey-Wijne I. 2024. What are we planning, exactly? The perspectives of people with intellectual disabilities, their carers and professionals on end-of-life care planning: A focus group study. Palliative Medicine 38(6): 669-678. doi:10.1177/02692163241250218.

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